
How does type 1 diabetes impact your child? What can you expect from your 5 to 7 year old? How much responsibility can your child assume for their diabetes management?
When your child is diagnosed with diabetes your child may:
Children must have adult supervision for diabetes-related tasks but as they get older they will gradually begin to take on some of these tasks themselves.
Try to encourage some responsibility (for example, ask them to go and collect their meter) but ultimately you are responsible. Your child may not have much concept of time, so you will need to make sure snacks and insulin for instance, are given on time.
You may gradually transfer some tasks to your child. This varies according to their abilities and interest. Sometimes children become over-enthusiastic, then get fed up and want to give back the task or don’t do the task very well.
Breaking up the tasks into smaller steps rather than learning too much at a time may help your child to feel more confident.
When your child is younger handling small things such as syringes/insulin pens may be difficult as fine motor coordination is still in the process of development.
Your child is able to cooperate with you by sitting still for a finger prick and insulin injection. Being able to choose a finger or a site for injection makes them feel as though they’re helping and have some control.
Three or four year olds can sometimes recognise a hypo and by the time they reach five, six or seven this is more evident especially if you draw attention to a hypo as it happens and ask them to tell you how they are feeling.
Your child can tell you when they feel hungry but they may be a bit vague in their description of hypo symptoms. They may not say “I’m having a hypo”, they are more likely to say “I feel wobbly, funny”.
You can never be sure that your child knows their hypo symptoms. It is a good idea to draw attention to symptoms straight after a hypo occurs so that your child can talk them over with you. This will help them to remember how they feel and the warning signs of a hypo.
These steps may need to be introduced a few days apart and should be done when you have time to spare and you’re not too rushed – on weekends for example.
Sharing tasks between both parents and the child is useful – for example Mum a.m., Dad p.m., child on weekends. Often children will be keen to help.
Concentrate on your child learning one task at a time, otherwise demands are too great and your child will be confused and unwilling to stick at it.
Your child’s skills may not be as good as your own, so patience is needed to increase their confidence. This is another reason for choosing a less rushed time of the day to try out new steps and tasks.
Encourage involvement when your child shows an interest in learning new tasks. It’s still important to observe your child’s ability and technique to avoid possible mistakes and short cuts. Aim to be positive and focus on the things they do well.
Make it clear to your child that you will slowly introduce responsibility, and that you realise they may sometimes need a break. Let them know that you will help them with diabetes tasks for short periods of time.
It’s very easy for you as a parent to carry on doing everything for your child whether they have diabetes or not, but it is vital for your child’s self-esteem and confidence, and your sanity, that you encourage the beginnings of self-care.
Some children do not want anyone outside the family to know that they have diabetes. However, it may be helpful for your child to tell their close friends what to do, especially if a hypo occurs when they are at school.
Your child will need the help of their peers and may need a guiding hand to deal with classmates and friends.
Some children may be happy to ‘show and tell’ about having diabetes.
If your child has had diabetes from an early age they may have told everyone – a lot depends on their personality. Other children may be more private in which case your advice as to how to go about telling their friends may be helpful. Together you can practise what to say.
Your child might like to do a school project on diabetes to tell their classmates how it is to have diabetes – for example, they could show how they use their meter. This may increase confidence through teaching their friends.
School events may motivate your child to help in self-care – for example, learning to correctly treat hypos so that they may attend sports events or school excursions.
Your child may be keen to sleep-over at a friend or relative’s house which may provide a gentle push to take on responsibility for some diabetes related tasks – seize every opportunity you can.
Having a small group of your child’s close friends see how the equipment is used, and directing simple, age appropriate discussion can help the more sensitive child.
Education days or support groups may be organised by your local diabetes centre to help you and your child meet other children with diabetes and their parents.
Camps are invaluable to help you and your child feel less isolated. In some states there are parent/child weekend camps which provide an introduction to the concept of the camping experience. Your child may then graduate to other camps throughout their childhood right up to adolescence.
Contact Diabetes NSW or Diabetes Australia in other states for information about camps and day activities.
For more information on diabetes at school please go to the Teachers and Schools page
Brothers and sisters may not like the sudden focus on the child with diabetes – Why all the fuss? Why do we have to rush home for injections? Why do we have to worry about food all the time? Your child with diabetes may well take advantage of this
Brothers and sisters who did not previously appear jealous of their sibling may begin to feel that way. If they thought their brother or sister were the favourite prior to having diabetes, this may add to the problem.
Brothers and sisters may fear that they will be loved less and pushed to one side in favour of the child with diabetes.
Brothers and sisters may worry that they might get diabetes.
IDEAS FOR COPING:
Diabetes takes a lot of time and energy so it’s normal to feel frustrated and tired from the constant daily demands of management.
Your emotions may change and recur (perhaps frequently) – guilt, frustration, helplessness, sadness, anger… and elation when all goes according to plan.
It can help to talk to someone who may understand, perhaps another parent going through the same thing.
Share your feelings with your partner, a friend or relative, support groups, your doctor, other health professionals such as a social worker or psychologist.
Share diabetes-related tasks with your partner, supportive family members or friends.
Keep in touch with your educator, as ongoing education can help you and your child at different stages.
Don’t be afraid to ask your health professional team for support and guidance.
Encourage relatives or friends to attend education sessions and/ or support groups to learn more about diabetes so that they may in turn give you support.
Find some time for yourself. It’s a worthwhile investment for the daily demands of parenting.
What does any child do with food at this age?
Ages 5-7 - Explores and ‘tries out’ different foods
Unlike the toddler, the young school aged child wants to fit into the world around them. At the same time they feel more independent and peer pressure begins to shape their behaviour. Children start to explore their environment more, at home and at school. This includes food choices.
It’s good for parents to continue to offer healthy foods and encourage acceptable eating behaviour but balance this with giving freedom of choice.
Peer pressure will have an impact, especially with foods. Foods that are heavily advertised will be favourites and more often than not will be high in fat, salt or sugar. These types of foods are suitable from time to time as special occasion treats. Try to find healthy foods in packets, eg fruit in a bag is popular
Low fat alternatives such as reduced fat milk and low fat cooking methods are appropriate at this age. The food choices of your child should be the same as the rest of the family – generally low in fat (especially saturated fats) and high in fibre. This keeps the whole family healthy and reduces the risk of long term health problems.
Eating Meals Away From Home
As your child reaches school age they begin to eat more meals away from the family home. This includes school lunches. This is when you may encounter things like swapped lunches (the grass is greener… in a friend’s lunch box) and missed meals (not enough time to eat and play!).
Helpful Hints:
Snack ideas:
If demands for ‘special occasion food’ increase (such as crisps and chocolate) “because that’s what everyone else gets”, it’s best to compromise by including treats for special occasions. Taking a balanced approach helps to teach your child about the difference between ‘everyday’ and ‘special occasion’ foods. These rules should apply equally to siblings and other family members.
Enjoys food in an expanding social scene
When a child starts school they may begin to separate from their parents, and rely more on approval from friends. This is a time of growing independence and socialising – sleepovers, camps, parties – fun. Staying over with their friends at night and sharing meals with their friends’ families becomes important in their social development.
Varying Appetite – Varying Insulin Dose
A child’s appetite varies during this time, usually indicating the body’s need for food. Growth spurts or periods of lots of activity are times when they will usually eat more. To cater for these changes, insulin dosage may need to be adjusted. This does not mean their diabetes is worsening as is sometimes believed. It’s an inevitable part of the growing process.
Talk to your doctor or diabetes educator about these adjustments. Frequent reviews (at least once a year) of meal plans by a dietitian are essential to ensure normal growth.
As they get older, children may be able to stay up later on some nights (such as the weekend). At times like this, it may be appropriate to give them a second supper to prevent hypos. Check their blood glucose levels (BGLs) to help to decide if this is necessary.
With increasing appetite it’s important to offer extra healthy food choices (e.g. fruit, vegetables, dairy foods) and seek advice on changes to insulin dosage to maintain good blood glucose control. Talk to your child’s doctor or educator.
Sharing Decisions About Food Choices
Along with their growing responsibilities for day-to-day tasks come the responsibilities of diabetes. A child at this stage is usually cooperative, willing to learn new tasks and responds to encouragement.
Learning about healthy food choices and understanding which foods (carbohydrates) affect BGL's is appropriate and possible. Helping out with cooking and making food choices in the supermarket are practical and fun ways for your child to learn.
Teachers, other parents and carers need to be informed that your child has diabetes – so they can be prepared. However, making a fuss about your child’s food choices may cause them to feel different and singled out. This is certainly the case if one child is seen to get more attention than other children. So providing a few simple guidelines for other people is best.
You may be concerned when your child is away from home - will they eat enough carbohydrate so they don't have a hypo?
Teaching your child about carbohydrate foods and quantities they need to eat is important. Extra fats or sugars occasionally are not going to be harmful in the long term.
Encouraging them to make their own decisions about how much they need to eat at meals at home is a good place to start. With this confidence they may deal with other situations more easily.
Making carbohydrate choices at meal times should not be difficult - offer selections from potato, corn, sweet potato, rice, pasta or bread. Desserts can also be nutritious and offer another carbohydrate alternative -try fruit or dairy based desserts such as fruit salad, yoghurt, banana split, custard or canned fruit.
Allowing your child to join in outings, sleep-overs and camps helps them to learn to share responsibility for their diabetes. Older school-age children are often ready to do more of their diabetes care, such as making their own food choices, assisting with cooking meals and even reading food labels.
At some time, either during a school outing or after school, your child will be exposed to fast foods. Takeaway outlets offer a variety of foods that are fast, fun and definitely appealing to children. Many of these foods are high in fat and salt and lack fibre; however they can be enjoyed from time to time. The type and amount of carbohydrate and fat are important considerations.
Better Choices Are:
Encourage your child to avoid sugary drinks like soft drink or fruit drinks (unless they are having a hypo) and choose plain water as the best everyday drink. Diet soft drink or diet cordial is also suitable occasionally.
Your child should be allowed to enjoy the foods offered at the party, including snack foods and birthday cake like other children.
It's helpful if teachers can inform parents in advance of special parties so they are aware of the cause of a possible rise in their child's BGLs.
If your child needs to take a plate for a party at school, here's some great party food ideas which can be enjoyed by everyone:
The type and amount of carbohydrate and fat are important considerations. Better choices are:
The checklist should include the following:
Carrying easily absorbed carbohydrate (e.g. fruit juice popper or glucose gel) at all times is another task to be learned and increase a child's sense of independence.
Exercise and sport may become more active, prolonged and routine, especially if played after school. Insulin doses may need to be adjusted and you may need to experiment with the amount and types of food to learn what suits your child’s needs.
For example, dried fruit and crackers are quick to eat.
Reminding your child to have BGL's checked before and after the activity, as well as topping up with carbohydrate foods is important. Talking to your dietitian and/or diabetes educator often helps.
Planning For Sport and Exercise
If extra activity is planned, your child may need additional carbohydrate food prior to the exercise. A general guide is a half to one extra carbohydrate exchange (7-15g carbohydrate) for every 30 minutes of physical activity. However the exact amount needed will be determined by the level of activity and blood glucose response to exercise.
Exercise increases the body’s sensitivity to insulin (increasing the risk of hypos) and this effect may continue for up to 12-16 hours following the activity. There is a lot of variation between individuals regarding these effects, so it is important to monitor your child’s blood glucose levels (BGLs) closely before, during and after exercise.
If regular exercise is expected, such as a sports day at school or swimming on the weekend, you may wish to discuss with your child’s doctor the need to reduce the insulin dosage on these days.
Carbohydrate foods for sport
If your child is involved in an endurance/long sporting event, they may need extra carbohydrate during and after the event to prevent a low BGL. A carbohydrate containing drink such as a sports drink can be handy, providing both fluid for hydration and carbohydrate for energy. Talk to your dietitian about suitable choices.
Although hypo symptoms are individual, mid-morning sleepiness, poor attention just before morning recess, or headaches, are common signs of low BGL's. It’s important to give a supply of hypo foods to your child and your child’s school teacher. These items could be kept in a separate lunch box in your child’s bag as well as in the class room
It is vital for teachers to understand the need for your child to sometimes eat a snack during class time to treat a hypo. This is best explained to them by you or your child’s diabetes educator.
Initially, fitting diabetes into the school day can be a balancing act. Depending on your child’s insulin plan and school routine, sometimes a before school snack may be necessary to prevent a hypo before recess. At the same time, preventing your child from feeling different by ensuring meals (such as recesses and lunch) are at the same time as the other children is essential. Your diabetes team can help work out your child’s insulin plan around their usual school routine.
Teachers may also be able to pick up the signs of a hypo and treat early if they are well informed.
They also need to be aware of avoiding delays in meal times and most importantly when treating hypos. Packing snacks for your child to eat during the school is one way to ensure they have enough food to eat to prevent hypos. This is particularly relevant if there’s a school day with extra activity planned such as sports day.
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