How does type 1 diabetes impact your teen?
How much responsibility should your teen assume
for their diabetes management?
Your Teenager - With or Without Diabetes
The teenage years are a time of big changes.
Teenagers begin feeling different, making changes, testing limits, experimenting with decision making, making mistakes, challenging adult rules, feeling that nothing can go wrong, risk taking, enjoying life, looking forward to new challenges.
- May feel caught between their inner drives, peer group pressure and family expectations.
- Is very self-conscious about physical development, physical health, and sexuality.
- Value possessions, popularity and status.
- Develop “crushes” on peers.
- Becomes angry with what they see as interference of parents in their life.
- May be moody and irritable.
- Begin to reason and see things from different points of view.
- Begin to handle a wider range of problems.
- May experience anxiety, withdrawal from those around them or feelings of depression
- Seek and develops a close circle of friends for social support and generally becomes more social.
When Your Teenager is Diagnosed with Diabetes
This age group gradually takes over all of their diabetes care, although it is important for them to have your support, encouragement and sometimes, advice. Continuing education sessions with the diabetes team will also help.
They may feel angry at having to consider their diabetes before they can do things that their friends take for granted.
They may find that eating, drinking, trying things out and general socialising puts pressure on them as they try to juggle fitting in with friends while having to manage their diabetes.
There may be problems with willingness to carry out their diabetes management needs. It may get in the way of lifestyle wants and they may feel it stops them doing more interesting things.
Diabetes may be seen as a hindrance to friendship and relationships.
They may find that the career path they want to pursue is one of the very few that excludes people with diabetes.
They may sail through adolescence, managing everything beautifully including their diabetes.
Living With Diabetes
Continuing to attend education sessions with the diabetes team will also help.
You and your teenager may become frustrated and irritated on occasions when there is lack of consistency of blood glucose results despite the effort put into insulin adjustments, exercise and diet. Blood glucose levels (BGLs) may be erratic due to varied physical activity and food intake, stress, growth and development, hormonal changes, or difficulty adhering to diabetes routines.
Willingness to carry out diabetes management is sometimes a problem, as the need for a routine interferes with a carefree existence. Doing things on the spur of the moment may be difficult and the need for adult supervision is still there, despite wanting to do their own thing.
The fear and embarrassment of hypos occurring in public may cause your teenager to ‘run’ their BGLs high.
Activity is often varied at this age and blood glucose levels may follow suit!
13 – 17 year olds may be more willing to have multiple injections or use an insulin pump once they realise it may give them more flexibility in their day-to-day life.
Trying things out is a part of this age group’s everyday life – it’s important that your teenager understands the implications of drugs and alcohol and the effect on the management of their diabetes.
It’s important that you ‘keep the door open’ for when your teenager wants advice.
Puberty in both boys and girls is a time when the need for insulin increases. Your teenager’s blood glucose control will vary with growth and hormonal changes.
Coping From Day To Day
Changes in their diabetes management plan should be talked over with your teenager. Letting go is a scary time, adolescents want independence yet don’t want to feel alone or ignored. Finding that happy medium between enough supervision and letting go is a real challenge for any parent.
This is a great way for your teenager to learn to deal with others. Your concern may be seen as nagging, and cause anger and resentment. However, your teenager may need to be reminded that your questions arise from concern and that it’s part of your responsibility as a parent to talk things through. You may even need to negotiate your negotiations, such as “What can we do so that you don’t feel I’m nagging and I know you’re OK?”
Some rules are flexible but injections or boluses cannot be forgotten. Identification should be worn. Hypo food should be on hand. It is important to set clear limits. Teenagers need consistent rules to feel safe. Parents need to look at each situation on its own merit and decide when rules can be relaxed.
It may be strained at times but maintain the lines of communication. Your teenager needs to learn how to problem solve and subsequently make decisions. Their way of doing things may not be the same as yours and there may be much discussion.
Ask how you can help:
They may ask you for advice to help with some blood glucose recordings for them. Once they see that you are helping and not just interfering they are more likely to respond.
When things are going well, praise your teenager on their management and sense of responsibility. Sometimes things don’t go well despite everyone’s efforts and acknowledgement of this is important. Remind them that the pay-off for being granted more freedom is for them to gradually take on more responsibility.
Recognise the frustrations for your teenager when things are not going so well.
This is a difficult time for all of you. Remember that things will get better.
Why all the fuss? Why do we have to rush home for injections?
Why do we have to worry about food all the time? Your teenager with diabetes may well take advantage of this.
Brothers and sisters who previously had no axe to grind may suddenly find one. If they thought their brother or sister were the favourite prior to having diabetes, this may add to the problem.
Brothers and sisters may fear that they will be loved less and pushed to one side in favour of the child with diabetes.
Some children worry that diabetes is catching or that their brother or sister with diabetes might die. They may think that something they have done has given their brother or sister diabetes – such as breaking a toy or not sharing. They may have nightmares, suddenly start wetting the bed or cling to you (remember that there are health professionals to help you and your family). Your child’s brothers and sisters need to know what is happening and to feel involved.
Involving siblings in the initial diabetes education, when appropriate, may help.
With time, families often find that they have become closer because of diabetes.
Problems can be sorted out with patience and understanding.
IDEAS FOR COPING
- Try to keep things as normal as you can (this is not always easy).
- Try and spend some special time alone with your child without diabetes, doing something fun and that they really enjoy.
- Be consistent in the way you discipline all your children.
All children, including those with diabetes should be encouraged to be active. In children with diabetes, physical activity can have varying affects on BGLs.
Physical activity usually lowers BGLs by helping insulin to work better. Sometimes physical activity can cause BGLs to be high, usually from stress or excitement.
It can affect children differently, so it’s a good idea to discuss any planned activity or changes to regular activities with the parents, as this may require them to make adjustments to the insulin dose.
During physical activity, the child with diabetes may have to:
- Test BGLs before, during and after physical activity
- Eat extra carbohydrate containing foods before, during and after physical activity (one additional serve of carbohydrate may be needed for every 30 minutes of exercise)
- Stop to treat a hypo or low BGL
- Take time out to recover from a hypo (this may take longer than 15 minutes)
- Watch for signs and symptoms of delayed hypos - hypos can still occur up to 16 hours after physical activity
It’s important for children with diabetes to join in all activities with other children, however, it’s vital that their additional needs are taken into consideration.
Your teenager may find that hiding their diabetes may seem to take less energy than explaining and confronting it.
Usually teenagers tell a few close friends, but they may not be keen to tell their teachers. This may cause problems if they have a hypo in class – if they eat something in class it will draw more attention to them. It is therefore important to encourage them to tell their main teachers, especially those who supervise sport. Telling these teachers can prevent misunderstandings, for instance, when they have to suddenly leave the game to treat a hypo.
Three good reasons for your teenager to let the teachers know about their diabetes are:
- Safety – so that the staff are aware that a student has diabetes.
- Convenience – they may have to eat a snack in class or on the sports field or leave the room for an injection. A hypo may make them lose concentration and appear inattentive. An understanding teacher may make life a lot easier.
- Because they want to – one teacher may be someone they particularly relate to and talking about their diabetes is part of talking about themselves.
If your teenager doesn’t want diabetes mentioned, they have a right to privacy. However, their school should have official notice, with a letter in their school medical records. If they don’t want their diabetes mentioned during class, they should let their teachers and friends know that this is their wish.
Despite your teenager being reluctant for you to speak to their teachers, it is important to stress to them that the school should be notified of their diabetes from a safety/legal point of view. Your diabetes educator or an educator from Diabetes NSW or Diabetes Australia in your State or Territory may be able to help. Alternatively, one of your teenager’s friends may help persuade your teenager to tell the school.
Your teenager may have to be the teacher regarding diabetes. Teachers and friends cannot be expected to understand problems relating to diabetes until they know more about it.
For more information on diabetes at school please go to the Teachers and Schools page.
In New South Wales there are four programs which deal with illness/ misadventure and exam conditions for students with any difficulty.
- School assessment policies – Determined and ruled by individual schools/colleges. They include arrangements in case of illness (hypo during an examination).
- Special examination provisions – Run by the Board of Studies for the HSC examinations.
- Illness/misadventure program – Run by the Board of Studies for the HSC. It involves illness or misadventure immediately prior to, or during, the examinations.
- Special access to universities – Run entirely by universities. Students, who have experienced difficulties during Year 12, contact each university to whom they wish to apply, and ask for information on their special access program.
In some states the school is required to send an “Application for Candidates with Disabilities” form together with a medical certificate, to the “Special Provisions for Students with Disabilities” Program at the Board of Studies. This is to be done six to twelve months prior to the examination.
During examinations the student is usually allowed to:
- Take bite-sized carbohydrate food such as dried fruit (but no noisy wrappers) to ‘top-up’ blood glucose levels throughout a lengthy examination.
- Have small group supervision or be seated near an exit so others are not disturbed if the student has to leave the room.
- Take a blood glucose meter and test strips into the examination room.
- Have a maximum of 5 minutes extra time per half hour of examination time to eat, drink, go to the toilet or check their BGLs. The student is not allowed access to the exam questions or answers during these breaks. The supervisor is required to time the breaks and extend the student exam time accordingly.
- Take insulin or insulin pump into the examination room for use as necessary
- If BGL falls below 5mmol/L, they may have one period of up to 20 minutes to take remedial action and retest your BGL. If after 20 minutes the BGL is still below 5mmol/L, an illness/misadventure application may be submitted. The BGL should be included in the application. Students can also elect to keep working.
Provisions are made on an individual basis with recommendations from your doctor. The student who experiences a hypo during the HSC (or equivalent) should apply to be treated as an “illness or misadventure case”.
Students treated in this way can usually receive a mark based on a school assessment instead of their examination mark.
You can obtain further information from your teenager's school, Diabetes Australia or The Department of Education. Or go to Useful Links to see a list of contacts in your State or Territory.
Having a Job
Lots of teenagers work part time while they're still at school and there's no reason why having diabetes should stop them from doing this. One of the big questions when applying for a job is "should I tell them I've got diabetes?"
While it's understandable that teenagers may not want to tell anyone, in the long run it is easier to let the boss know especially when it comes to the need for testing, treating hypos, eating regularly and taking insulin. The employer has a duty of care to provide a safe work environment, but equally, you have a duty of care to be responsible and manage your diabetes.
It's a good idea to discuss with the employer about the need for:
- regular meal breaks
- somewhere private to test and inject
- time out to treat a hypo
- other staff to be aware of hypos, how to treat them and what to do in the case of an emergency
People with type 1 diabetes can usually follow the career path of their choice, with a few exceptions:
- the defence forces e.g. army, navy, air force
- full time or volunteer fire brigade
- the police force
- the aviation industry - commercial and private
- careers that involve high risk activities e.g. at heights, underwater or solo in nature
Should you need further information regarding career options or feel or your teenager feels like they are being discriminated against in the workplace, call Diabetes Australia on 1300 136 588 in your State or Territory.
Further information for your teenager can be found here.
When your teenager first mentions learning to drive, don’t panic!! Any parent is anxious when their teenager wants to learn to drive.
However, with a responsible attitude, driving is generally safe, and research shows that people with diabetes do not have a greater frequency of motor accidents than anyone else. The major added risk for the teenager with diabetes is hypoglycaemia (hypos).
It’s very important that they have a good knowledge about hypos – their symptoms, treatment and prevention.
Driving and alcohol is illegal. In a teenager with diabetes, alcohol may cause delayed hypos.
It is important for your teenager to check their blood glucose prior to driving a car and be above 5mmol/L to drive and to have hypo treatment readily at hand.
Each State and Territory has its own regulations regarding the allocation of licences to people with diabetes.
For further information on driving and type 1 diabetes visit:
Your teenager with diabetes is just like other teenagers, and is just as likely to take risks with their health.
Risk behaviour occurs particularly in early teenage years when it is more important to be like their friends and to fit in socially, than it is to display healthy behaviour!
Teenagers see themselves as unstoppable and don’t believe they can become addicted to something harmful, or that anything can go terribly wrong in their lives.
It’s natural for you to worry that your teenager might make wrong choices.
Mistakes will happen and usually lessons will be learned. This is normal part of growing up.
Smoking is harmful to the health of everyone, no matter what their age. Smoking should be discouraged in people with diabetes. Nicotine damages blood vessels. Smoking is also associated with high blood pressure, poor diabetes control and has additional risks in pregnancy.
Teenagers with diabetes need to be aware of the additional risks of drinking alcohol. Alcohol blocks the body’s natural method of correcting hypos, and may lead to them going undetected. The combination of alcohol-induced confusion and a low BGL is dangerous. Reaction times during a hypo have been shown to be reduced. Hypos can also occur many hours after drinking alcohol.
Whether or not you allow your teenager to drink, they may experiment with alcohol anyway.
Your teenager is advised to:
- Drink in moderation and avoid binge drinking
- Not exceed the recommended safe intakes – 2 standard drinks a day for adults
- Avoid consuming alcohol on an empty stomach
- Test their BGL regularly during and after consuming alcohol
- Eat carbohydrate foods while consuming alcohol – regular soft drinks or juice are suitable if there is no food available
- Eat snacks and meals on time
- Test their BGL before going to bed, eat a bedtime snack and make sure their BGL is above 7mmol/L
- Not to count alcohol as part of carbohydrate exchanges.
- Always carry some medical identification, so that if an emergency situation arises, appropriate action may be taken
- Have a friend that knows about diabetes and can recognise the signs of a hypo and knows how to treat it
- Try to check BGLs when combining alcohol with being physically active such as dancing at parties. This may not be possible in every situation.
Alternatively, check BGLs before going out and then again before bed, to prevent an overnight hypo. Asking a parent or family member to do a 3am BGL is another way of preventing an overnight hypo
- There are ways of stretching drinks so that it’s still possible to be part of the crowd without feeling pressured to keep up!
- Alternate alcoholic drinks with non-alcoholic drinks such as Diet Cola
- Halve the serve of alcohol per drink. Two drinks can become four by ordering wine spritzers (half wine and half soda), half nips of spirits with soda/diet mixers in a tall glass, or shandy (half beer and half diet lemonade)
- Choose low alcohol beers
Drug use, which usually occurs with other risk taking behaviour, is likely to be experimental or recreational and its effect on diabetes management may be minimal to severe.
Tobacco and alcohol are the most common substances which have the potential to lead to abuse. Regular drug use affects diabetes control and this may be denied by the teenager.
Recreational drugs may:
- Alter awareness and understanding
- Alter consciousness and sensation
- Alter understanding and the ability to make judgements
- Reduce capacity and interest in achieving good blood glucose control
- Reduce interest in routines, injections and meal times
- Reduce appetite and interest in food, increasing the risk of hypos
- Increase the risk of hypos going undetected
- Stimulate appetite (marijuana) leading to high BGLs
- Teenagers need to understand the risks of drug taking and the additional risks because of diabetes.
As teenagers may not actively seek contraceptive advice, discussion about sexual activity and the need for safe contraception should be a routine part of management for all adolescents. Contraception is essential in reducing unplanned pregnancies.
There are a number of risks during pregnancy for both mother and baby, but with careful planning, as well as support from a team specialising in diabetes in pregnancy, women with diabetes will usually have healthy pregnancies and healthy babies.
For more information on contraception and pregnancy go to www.pregnancyanddiabetes.com.au
Fear of impotence is very real in teenagers. It is unusual in the adolescent age group and may be minimised/prevented by good management of BGLs. Risk factors include increasing age, duration of diabetes and poor diabetes control.
Your teenager may feel more comfortable talking to their doctor, dietitian or diabetes educator by themselves to discuss practical aspects of living with diabetes (eg. parties, alcohol). This can help your teenager in managing their diabetes and taking more responsibility for their wellbeing.
For more information go to myd.ndss.com.au
Your teenager needs to know about the possible health effects of diabetes, and this should be relayed in a sensitive way. Frightening stories of complications and long-term health problems will not motivate them but rather make them dwell on the negatives. It may cause them to give up their diabetes care altogether because “it won’t matter anyway”. Make sure they are up to date with diabetes education, and that they are well informed about how to minimise their risk of developing complications.
Screening for complications is usually carried out yearly, but depends on the advice of your teenager’s diabetes specialist. With a detailed screening program and regular health checks, any problems or early signs of complications can be detected before they affect health.
The following checks should be performed:
- Eyes: 2 years after diagnosis then once a year – testing of the back of the eye (retina) by an ophthalmologist or trained optometrist is advised.
- Kidneys: 2 years after diagnosis then once a year.
- Feet: as recommended by your diabetes team.
- HbA1c: every 3 months either at your clinic visit or at a pathology lab.
- Weight and Height: every 3 months at your clinic visit.
- Blood pressure: at least once a year or more often if needed.
- Cholesterol/Coeliac/Thyroid function tests: as recommended by your diabetes team.
A diabetes doctor or educator can arrange these tests. How often these tests are done may depend on which diabetes centre you attend. Even small improvements in diabetes control can make a difference to the risk of long-term complications.
Early detection is positive because:
- Prompt treatment in many cases results in improvement
- It warns people to take extra care of their diabetes
- Some doctors perform these tests in their hospital clinics or private rooms. For further information, contact your local diabetes centre or specialist paediatric unit.
- It will help your teenager to receive some re-education, perhaps with a friend, and to be given some information regarding drugs, alcohol, contraception and complications.
For a teenager without diabetes the result of missing meals and eating at unconventional times is most likely hunger pains, mood changes and snacking on junk food. However, for a teenager with diabetes there is the potential for more serious risks such as varying BGLs.
Teenagers usually don’t want to appear to be different from their friends. Those with diabetes may feel resentful that their diabetes management plan interferes with their social life. It’s common for teenagers to experiment with missing injections or varying injection times or food.
This may be the age when multiple injections and/or insulin pens are worth considering. For some teenagers it provides a more flexible way of managing their diabetes for others it may not be the best option. Any changes should be discussed with their doctor, dietitian and diabetes educator.
Mornings are not everyone's best times and this applies equally to teenagers. Breakfast is important for good nutrition, concentration at school and managing BGLs.
If your teenager doesn't feel like eating, try some of these ideas for breakfast in a flash.
- Cereal and low fat milk.
- Fruit and low fat yoghurt.
- Toast, such as raisin.
- Warm muffin.
- Toasted sandwich.
- Milo with low fat milk.
- Crumpet or toast with banana, peanut butter or honey• Fresh or canned fruit.
- Low fat flavoured milk.
- BBQ chicken on a roll.
- Plain hamburger with salad.
- Doner kebab and salad.
- Toasted sandwiches or focaccia .
- Grilled fish and chips.
- Asian stir-fry or noodle dishes.
- Vegetable based or gourmet pizzas.
- Fruit smoothies or low fat milkshakes.
- Low fat flavoured milk drinks.
- Reduced fat ice cream / frozen yoghurt.
- Diet or low joule soft drinks.
Filling teenagers up
Teenagers, particularly teenage boys, seem to eat extremely large amounts of food.
These changes in appetite are normal during growth spurts and need to be discussed with the diabetes team so that insulin dose is matched with food intake.
To ensure that your teenager is growing up but not out, it’s also important to encourage healthy ‘filling’ food choices based on wholegrain breads, cereals, fruit, vegetables and low fat dairy foods.
At puberty, teenagers experience a growth spurt, weight gain and significant changes in body shape. This can cause some teenagers to become very concerned about their appearance. Appetites will increase during growth spurts and insulin requirements will vary in response to hormonal changes.
BGLs can be difficult to control and it’s important to seek regular and appropriate advice regarding changes to diet and insulin regimens.
Preoccupation with weight most often occurs in girls but may be present in boys. Dieting behaviours are common and in some cases eating Disorders can be the result.
Fad diets can be harmful due to their variable carbohydrate and poor nutrient content. Diet pills are sometimes seen as a quick solution but have side effects and are not recommended. Encouraging teenage girls in particular to remain active in high school can help improve body image and assist with maintaining a healthy weight.
Advice from a dietitian can also assist to identify and manage weight problems.
Warning signs of an eating disorder include:
- Preoccupation with food.
- Converting to vegetarianism.
- Skipping insulin injections.
- Extreme weight loss.
- Wearing multiple layers of clothing (to cover what is perceived as fat).
- Trips to the bathroom after meals or snacks.
- Food restriction followed by binge eating.
If you are concerned your teenager is at risk of an eating disorder, seek the advice of your diabetes team.
Become a member
Diabetes NSW & ACT Membership - Helping you support your child.As a member you have access to:
- Quarterly issue ofCircle Magazine– full of helpful articles, informative interviews, recipes, and a variety of tips for managing diabetes.
- AS1 Kids Magazine**- a children’s magazine covering stories about living with diabetes, camp, school and food.
- Monthly Dialogue e-newsletter - updates on research, events, seasonal tips, recipes and more.
- 10% member discount on everything at Diabetes Shop.com with items like cookbooks, medical identification and diabetes travel packs.
- Free or discounted attendance at Diabetes NSW & ACT Forums, Expos and other events like Diabuddies Days.
- Rewards program– access to hundreds of discounts from your favourite retailers and activities like Coles, Woolies, Hoyts, Harvey Norman, holidays, accommodation, concert & sporting tickets- our way of saying thank you for being a member!